SF/TSG #010

This material has been developed by and is presented by The Sandwich Generation ®

Information and Health Resources

The first step toward getting help is often only a phone call away – and may even be free!  Helplines are generally answered by individuals who had some personal experience with the condition their organization focuses on, so they are sympathetic as well as informed.  Many are volunteers who truly want to help others.

Abledata
8455 Colesville Road, Suite 935
Silver Spring, MD  20910
1-800-227-0216

This toll-free number connects callers to a database of assistive and rehabilitation equipment such as powered wheelchairs and voice-activated products.  Fees are charged for extensive searches, but an information specialist can answer simple requests and provide manufacturer referrals.

American Academy of Ophthalmology
National Eye Care Project Helpline
1-800-222-3937

American Association of Homes and Services
For the Aging
1-800-508-9442

The American Association of Retired Persons (AARP)
1-800-424-3410

The nation’s largest nonprofit organization for men and women age 50 and older has more than 3,500 chapters and an extensive array of informational guides, educational programs, including "55 Alive," a refresher course for motorists, the grandparent information center, a directory of caregiver support groups in America.  Members also get discounts on group insurance, travel and other services.

American Cancer Society
1-800-227-2345

The hotline provides research and information about cancer for patients and their families in addition to local sources of related services and support.

American Chronic Pain Association (AACPA)
PO Box 850
Rocklin, CA 95677
916-632-0922

This self-help organization focuses on individuals suffering from pain that last six months or longer.  To locate a local support group, call the national office listed above.

The American Dietetic Association
National Center for Nutrition and Dietetics
216 West Jackson Blvd.
Chicago, IL  60606-6995
1-800-366-1655

Call the free hotline to hear pre-recorded food and nutrition messages on topics that change each month.  Registered dieticians are also available to answer individual questions about food and nutrition at a cost of $1.95 for the first minute and 95 cents for each additional minute.  Call 1-900-225-5267, 9 a.m. to 4 p.m. weekdays; Central time.

The American Parkinson Disease Association
1250 Hylan Blvd. Suite 3B
Staten Island, NY  10305
1-800-223-2732

Information about this progressive neurological disease and referrals to local support groups are available to callers nationwide.

American Pharmaceutical Association
Patient Information
1-800-237-2742

American Speech-Language-Hearing Association
1-800-638-8255
Consumer hotline (toll-free).

Arthritis Foundation
PO Box 7669
Atlanta, GA  30357-0669
1-800-283-7800

Call the toll-free number for information about arthritis, referrals to doctors and to find the location of the nearest educational meeting or exercise class.  Brochures are available from a menu of choices.

Assisted Living Facilities Association of America
Circle Towers Plaza
9411 Lee Highway, Suite J
Fairfax, VA  22031
703-691-8100

Assisted living is a combination of housing, support services and health care designed and coordinated to meet an individual’s needs.  For information and/or consumer checklist of services, contact the association at the address above.

Chief Postal Inspector
United States Postal Service
Washington, DC 
202-268-4298

Children of Aging Parents (CAPS)
1609 Woodbourne Road, Suite 302A
Levittown, PA 19057
1-800-227-7294

Focusing on care for the caregiver, this nonprofit, membership organization publishes a newsletter and other helpful material.  Caregivers are put in touch with support groups in their area through a nationwide database.

Christmas in April* USA
1536 Sixteenth Street, NW
Washington, DC  20036-1402
202-483-9083

A volunteer organization that, in partnership with communities, rehabilitates the houses of low-income homeowners, particularly the elderly and disabled.  Call the number listed above for information about the application process and local programs.

Elderhostel
PO Box 1959
Wakefield, MA  01880-5959
http://www.elderhostel.org

Elderhostel combines education with informal, inexpensive lodging in a program designed exclusively for older adults.  It consists of a network of colleges and universities, parks and museums, theaters and environmental centers offering courses throughout the US and internationally.  The average age of participants is 71.  About two-thirds are women.  Write to the address above for a catalog of programs, or access their web site.

Family Service America (FSA)
11700 West Lake Park Drive
Milwaukee, Wisconsin
1-800-221-3726

An organization with agencies in 41 states, FSA supports public policy on behalf of families and operates an information hotline for questions on such related topics as eldercare and family economics.

The Federal Trade Commission
Division of Marketing Practices
6th Street and Pennsylvania Ave. NW
Washington, DC  20580
202-326-3128

The FTC together with several other agencies has published a booklet titled "Who Cares," which contains telephone numbers in order to obtain accurate information on health care services and products.  Everything from hearing aids to nursing homes and fraud schemes are covered.  Telephone numbers for the 10 FTC regional offices are included in the booklet.

The Food and Drug Administration
Consumer Affairs Information line
1-800-532-4440

Center for Food Safety and Applied Nutrition
1-800-332-4010

Generations United
c/o CWLA
440 First Street, NW Suite 310
Washington, DC  20001-2085
202-326-5263

This organization has a unique, new focus on the growing social phenomenon of grandparents raising children.  Through public advocacy, it strives to be a catalyst for community programs that improve the quality of life for these and other inter-generational families.

The Lighthouse Inc.
111 East 596h St.
New York, NY  10022-1202
1-800-334-5497

A phone call to the information and resources center puts you in touch with a data bank of facts about eye disease, low vision and where to find vision services and products.

International Parish Nurse Resource Center
1-800-556-5368
need more info

Medicare Rights Center
212-869-3850

MRC, a non-profit public education and counseling organization, helps ensure that seniors and those with disabilities on Medicare have access to quality, affordable health care.

National Academy of Elder Law Attorneys (NAELA)
1604 N. Country Club Rd.
Tucson, AZ 85716
1-520-881-4005

Elder law is a growing specialty that focuses on the needs of aging and disabled adults.  This is an association of these professionals.  A list of elder law attorneys around the country may be obtained at a cost of $25.

National Alzheimer’s Association
1-800-272-3900

Helpful answers are provided about this debilitating disease that afflicts more than 4 million Americans.  Also referrals to chapter support groups where families can share solutions and offer solace.

National Association for Home Care (NAHC)
228 Seventh St. SE
Washington, DC  20003
202-547-7424

NAHC represents home care providers, including hospices aides and agencies that provide services.  Two free consumer guides are available.  To obtain "How To Choose a Home Care Provider" or "Information About Hospice," send a self-addressed stamped envelope to NAHC, Consumer Guide, PO Box 15241, Washington, DC  20003.

National Association of Professional Geriatric Care Managers (GMC)
1604 N. Country Club Rd.
Tucson, AZ  86716
520-881-8008

A geriatric care manager is a professional who specialized in assisting older people and their families with coordinating long-term care arrangements.  A national directory of geriatric care managers may be obtained at a cost of $35.

National Cancer Institute
Cancer Information Service
1-800-422-6237

National Center for Vision and Aging
1-800-334-5497

National Citizens’ Coalition for Nursing Home Reform
1424 16th St. NW, Suite 202
Washington, DC  20036-2211
202-332-2275

National Eye Institute
Bethesda, MD  20892
301-496-5248

National Family Caregivers Association
9621 East Bexhill Drive
Kensington, MD  20895-3104
1-800-896-3650

The NFCA is a not-for-profit membership organization whose mission is to improve the quaity of life of family caregivers (including those who care for children, ill spouses and aging parents) through education, support and validation.  It publishes an informational newsletter, refers callers to service agencies in their areas and runs a greeting card program whereby caregivers recieve upbeat messages in the mail three times a year.  Individual memberships are $20 annually.  Call the number listed above to receive an information packet.

National Hospice Organization
1901 North Moore St.  Suite 901
Arlington, VA  22209
1-800-658-8898

Hospice refers to a special kind of care for people who are terminally ill.  Its mission is to enable patients to spend their days with peace and dignity in the comfort of their own homes or in facilities with home-like settings.  Care is aimed at pain relief, symptom control and respite for family caregivers, provided by a team of specially-trained doctors, nurses, counselors and volunteers.  For general information or local referrals, call the number listed above.

National Institute on Aging Information Center
1-800-222-2225 (toll-free/voice)
1-800-222-4225 (toll-free/TTY)

National Institute On Deafness and Other Communication Disorders
Information Clearing House
1-800-241-1044 (toll-free/voice)

National Meals on Wheels Foundation
1-800-999-6262

A national service delivering nutritionally-sound meals to the homes of those who are unable to get out to purchase groceries or prepare meals.  Low cost or free.

National Osteoporosis Foundation (NOF)
Dept. MQ
PO Box 96616
Washington, DC  20077-7456

The NOF is a national resource for the latest information on this bone-weakening disease.  A packet of information on osteoporosis prevention and treatment is available from the address listed above.  To locate a local support group, call Liz Stone at 312-464-5110.

National Society to Prevent Blindness
1-800-331-2020

Prevent Blindness America
1-800-331-2020

Shepherd’s Centers of America
One West Armour Blvd., Suite 201
Kansas City, MO  64111
816-960-2022

Inspired by religious values, this national network of interfaith centers offer respite and life enrichment programs, such as "handyhand," (linking retired craftspersons with older homeowners) and "adventures in learning" (classes taught by retirees).

Stroke Connection
American Heart Association
7272 Greenville Ave.
Dallas, TX  75231-4596
1-800-553-6321

Stroke Connection is an information and referral hotline to local support groups.  Phone lines are answered by volunteers who have personal experience with stroke.

U.S. Administration on Aging
Eldercare Locater
1-800-677-1116

U.S. Department of Health and Human Services
National Health Information Center
1-800-336-4797

U.S. Pharmacopeia
1-800-488-2665

Well Spouses Foundation
610 Lexington Ave.  Suite 814
New York, NY  10022
1-800-838-0879

Focusing on the often-overlooked needs of spouses of the ill and disabled, this foundation sponsors local support meetings and round-robin, letter-writing groups.  Members receive a bi-monthly newsletter.


If you think you’ve been misled or decieved by an advertisment for a health care product or a medical procedure, contact your state Attorney General, or the Federal Trade Commission in Washington, DC or at one of these 10 FTC regional offices:

1718 Peachtree Street, NW, Suite 1000
Atlanta, GA  30367
404-347-4836

101 Merrimac Street, Suite 810
Boston, MA  02114
617-424-5960

55 East Monroe Street, Suite 1860
Chicago, IL  60603
312-353-4423

668 Euclid Avenue, Suite 520-A
Cleveland, OH  44114
216-522-4207

1999 Bryan Street, Suite 2150
Dallas, TX  75201
214-979-0213

1961 Stout Street, Suite 1523
Denver, CO  80294
303-844-2271

11000 Wilshire Blvd., Suite 13209
Los Angeles, CA  90024
310-235-4000

150 William Stret, Suite 1300
New York, NY  10038
212-264-1207

901 Market Street, Suite 570
San Francisco, CA  94103
415-356-5270

2806 Federal Building
915 Second Ave.
Seattle, WA  98174
206-220-6363

This material is copyrighted by Carol Abaya Associates and cannot be reproduced in any manner, print, or electronically.